Dear Friends:
I want to wish everyone will have a happy holiday season and of course，
a happy， and healthy， New Year - 2006 !
The IFMSO newsletter， Marfanworld E-News， has been launched on the IFMSO
web site， and you can access it on : http://www.marfanworld.org.
<<<click on the link in the box at the top of the page， or click
on the "RECENT NEWS" button on the left.>>>
I want to thank Wenche Snekkevik， (President， Marfanforeningen， and IFMSO
Vice President)， and Linn Hustad， (Norway) for their informational article
on the Norwegian Marfan Organization， (norske marfanforeningen). Their
work on compiling the Traveler’s Emergency Room Folder has been outstanding
and of course is on-going， since their organization will be distributing
this brochure to those who request it through e-mail requests. They will
also be adding new and different languages when needed.
Thank you， Wenche and Linn.
Thank you， also， Drs. Bart Loeys， Jo Grima， and Anne De Paepe， for sending
in the excellent detailed summary of the Ghent Symposia， which is also
included in this first newsletter. Please feel free to copy and paste it
in to your own newsletter if you wish， or send the report on to your medical
advisors and local clinicians for their information.
And finally， thanks to Yoko Shimozaki， (IFMSO Vice President， Marfan Network，
Japan); Sally Ferguson (Marfan Association， Victoria， Australia); Geraldine
Duran， (Sindrome de Marfan de Mexico)， and Nicolas Beltran Sogorb， (Asociacion
de Afectados Sindrome de Marfan， SIMA， Spain)， for the update of the activities
of their organizations and their greetings to IFMSO. We invite all of you
to send in notices of events and activities for the next newsletter， the
deadline of which is March 15， 2006. Questions? Send them to me， Priscilla，
(cilla71@aol.com).
Be well， and keep in touch.
2005年12月28日
【要訳】
IFMSOの新しいホームページ「マルファンワールド、E-ニュース」最新版の紹介です。「最近のニュース」の項目ではそれぞれの国のニュースを載せているのですが、今回岐阜の講演会のことを記事にしました。ご覧ください。
http://www.marfanworld.org/
の中のrecent newsのJapanのところです。あとは、以前協力したノルウェーの作った、海外でも使える救急救命カードの紹介です。
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